Rainbow Kids offers support for life-limiting conditions

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Rainbow Kids is the pediatric palliative care program at Primary Children's Hospital. Rainbow Kids is a consultation service available to any children and families who are experiencing a chronic complex condition or a life-threatening illness. The program is here to help both the child and family deal with feelings, symptoms, and concerns during a time that may be confusing and overwhelming. Our team is available to assist you with your treatment goals of care.

Hear from and learn from fellow parents and clinicians in videos, guides and blog posts.

Along this journey you will likely encounter moments of great hope and joy, and others when you will feel frustrated, scared, lonely. With some of these experiences and feelings will come challenging moments for you and others who want to support you. Here you will find information and ideas to help you cope, with insights from others to guide and support you in being your child’s #1 Advocate.

We can guess, but never really know, how we will feel when a child dies. Grief is a normal response to loss, although the feelings can change over time. There a sense of profound absence. Many families speak of intense loneliness and sadness. Some parents speak of the presence of their child. Over time, you may experience bursts of new energy, or lingering questions, or regret, or relief, or all of these. Family dynamics and other relationships may change. One thing is certain: life is different, and it will never be the same. 

The Rare Life is a nonprofit organization that provides emotional support for parents of children with medical complexities and disabilities.

This document provides age-appropriate language for talking to children about death of a sibling. There are also lists of other resources that can be helpful when navigating these conversations.